Take action on health reform! Email your MP
Join EDCM in calling on the Government to make child health and disabled children a priority for the NHS. Email your local MP (England only).
EDCM has today (Monday 24th October) launched 'Disabled Children and Health Reform' - a campaign report calling on the Government to provide a clear focus on child health in the reform process and to ensure that the new health system addresses long-standing problems experienced by disabled children in accessing health services.
Sign up to the Finished at School campaign
Ambitious about Autism have launched Finished at School - a campaign calling for more and better educational options for disabled young people once they finish at school. Please sign up to support the campaign now.
Take action on health reform
Failures in the health system can stop disabled children getting vital health support. These include:
- Delays to getting equipment - e.g. wheelchairs
- Restrictions on vital support - e.g. nappies for children with continence issues
- Disputes over who funds the service
- Poorly coordinated appointments
- Poor communication across the system
- A confusing transition to adult services
The Health and Social Care Bill, which enters Lords Committee on 25th October, is an opportunity to address these failures. However, there is currently no mention of disabled children or even the child health system in the Bill. Consequently, there is a significant risk that Government will repeat the mistakes of the past.
EDCM believes that there is a clear choice for Government; act now and use the opportunity of reform to create a system that works for disabled children, or proceed with reform concentrating on adults and leave families with disabled children struggling to fill the gaps.
Click here to send an email to your MP asking them to join EDCM in calling on the Government to make child health and disabled children a priority in the reform process.
For further information on the problems that disabled children and their families experience and on EDCM's recommendations for change please read: http://www.ncb.org.uk/edcm/health_reform_report.pdf
Thank you for your continued support.
Laura, Helen and Peter
Every Disabled Child Matters is the campaign fighting for rights and justice for every disabled child. Please sign up to support the campaign now, and ask everyone you know to do the same.
You can donate to EDCM online.
Registered Charity No. 258825. Registered in England and Wales No 952717. Registered office: National Children's Bureau, 8 Wakley Street, London, EC1V 7QE.